H O M E!!!!

HOME from the doctor's today!!! Key word being home...this is huge for him. His PFT's were not that great, but the doctor said that will come. He has to gain weight, so carnation instant breakfast in his whole milk...milk shakes, McDonald's, you name it he can have it!!!

You're probably thinking he doesn't look that skinny...well people with CF they encourage to gain weight or keep it on because the higher the bmi the better the lung function.

So, Rickie eat, eat, eat and don't forget your enzymes!

Thanks for all your positive thoughts and prayers...you guys make me tear up thinking you really do care.

Thanks, Carrie and Heidi you guys are my girls! :)

Friday Update

Pretty busy week thus far...Rickie loves his port, really relieves his anxiety level (no more pokes!) They did a throat swab and found aspergillus fungus. Not a good thing-also tested to see if he is allergic to it. Will find out this afternoon sometime. Doctor's said to expect to stay at least another week. I got to stay in the hotel right in the hospital last night boy, am I refreshed! Staying on the couch is not comfortable and it's very noisy. Two room mates who happen to be newborns...(ugh) love them, but you know, up all night :) I will update later. Miss everyone, oh yeah Ric is staying up here until Sunday. (Yeah!)

Love, Carey

Update on Rickie

I decided to update on my blog...a lot easier than e-mailing everyone:) I'm waiting for a call from the hospital to let me know when a bed becomes available. The doctors were not pleased at all with Rickie's PFT yesterday. The middle airways are only functioning at 30% (not good). He will have a port put in Monday so that they can access his IV meds and draw blood as well. That's a good thing, Rickie hates to be poked! I think they will leave it in for years as long as it's taken care of properly by moi. He will be getting intense therapy, meaning a lot during the day a long with his medications. Schooling is scheduled as well-he doesn't get out of that one! On a more serious note, please say a prayer, or send positive thoughts for Rickie. Our family is very concerned with this recent knowledge of his middle airways. I will try to update daily.

Love,

Carey